DAY 1 (May 14, 2011) -
First I forgot to say yesterday that I had gained 3 and half pounds since last visit! That is a total of about 15lbs gained since starting treatment.
So I slept decent last night. Woke up worn out today. I just laid on the couch the whole day. My taste was way way off today and I have a horrible mouth sore so eating sucked. I mean nothing tasted right not even a little. Not even orange pop which usually tastes okay. I tried taking a nap but only got about an hour in. Well I really guess that is it for today.
DAY 2 (May 15, 2011) -
Slept well. But was tired all day. I slept a ton. My taste was still off and it was hard to eat anything. My sore is about gone which does help. Sorry this is so short but that is really all I have to say for today.
DAY 3 (May 16, 2011) -
Slept good last night. Didn't even need to read before bed I just pooped right out. I woke up super tired. We ended up taking Kalli to sitters and I slept for about a total of 4 hours for a nap. I think I could have slept more. My taste and appetite was still not right. So annoying!!
DAY 4 (May 17, 2011) -
Slept good again last night. Went right to sleep no reading needed again. Bone pain started today and was still pretty tired. Did some more laying around and napping. My taste is slowly starting to come back which is awesome. But still can't quench my thirst. I am hoping by tomorrow that will all be back to normal.
DAY 5 (May 18, 2011) -
No problem with sleep again. Woke up feeling pretty good. Almost back to "normal". Still didn't do a whole lot during the day even took a nap. But we did manage to go out for dinner. It was much needed. With the weather being crazy and me laying around the last few days I just had to get out of the house. Still had a good amount of bone pain. That is really all to report for today.
Saturday, May 14, 2011
Friday, May 13, 2011
The Eighth Chemo
Or otherwise known as the chemo that almost didn't happen. I have had a very painful toothache for the last couple of days. Well I know that you are unable to get certain procedures done at the dentist while on chemo. So I asked my nurse about the restrictions and getting something for the pain. She went and asked the Nurse Practitioner about it. The NP came back and told me that she thought that I shouldn't do treatment today that I should try to get in to the dentist today. That today would be the best day to get anything done. And once I did chemo I would have to wait again to do anything. I told her that I rather just do the chemo. She said no please call you dentist. So I did and they are apparently closed on Fridays. So she insisted on calling the on call dentist. She also told me that with my counts they way they were she didn't want to give me treatment if I had an infection. Well about 20 mins later she came to me and told me that she spoke to the head NP and she said to go ahead with treatment. And that I should just get with my dentist soon. And they prescribed an antibiotic and a pain killer (which she didn't originally want to do either) I was so relieved at this point. I was basically in tears before that. I just didn't want to postpone my treatment and if I did that then I would have to postpone my PET scan that I have scheduled and it would all just be a pain in my ass. So after all that was said and done my treatment went well. I feel asleep this time. I was fighting it but didn't win. Been a long time since I have fallen asleep at treatment. My mom took Kalli for that night and I was unable to fall asleep. And I am just now starting to get the strange feeling in my knees and tingling in my arms. And I am tired but not fall asleep tired. Just have to say I am so happy I got to do treatment today. I would have disappointed if I didn't get to do it. I would rather do treatment and live through the pain of my tooth. I just want to get well already!!!!
Saturday, April 30, 2011
Days following Seventh Chemo
DAY 1 (April 30) -
Slept quite well last night. Woke up kinda tired and was just lazy most the afternoon. Was unable to nap so I decided to go pick up Kalli from my moms. She was going to stay another night because Kurt had to work but I missed her too much :) And was feeling decent. My taste and appetite aren't great today. But other than that no more to report.
DAY 2 (May 1) -
Had a good sleep until Kalli decided to wake up at 6 and not go back to sleep. I was again just pretty lazy all day. Didn't even get out of my PJ's. I was able to take a okay nap. I really wish it had been longer. Taste still not great. Appetite decent.
HAIR NOTE: Ever since I had my head shaved, my hair continues to grow quite fast. I am debating on just letting it grow now. I have a feeling that my hair may have not fallen out. Who knows....
DAY 3 (May2) -
Slept better last night. Felt tired today but didn't seem as bad as usual. I did still take a nap which could have been longer and I had no desire to do much of anything. But overall I felt ok. Taste still off and started getting the heartburn and bone pain today. Well I guess I don't really have more to add to that.
DAY 4 (May3) -
Slept good again last night. Was pretty tired again all day. Took a nap but I didn't get a very good nap at all. Been raining so much here that were all antsy to get out of the house. So we went out for dinner then stopped at Target to do a little bit Mother's Day shopping. By the time we got home I was so exhausted and in a ton of pain.
DAY 5 (May 4) -
Slept okay. Woke up in a ton of pain. Was worn out and in pain all day with no relief. I took a pretty good nap. Was able to make dinner and give Kalli a bath but that really pushed it for me. Was just too much to handle. So sad. Most people think of these as simple tasks. But for me right now it was extremely hard. I was in tears by the end of bath time. After Kalli went off to bed I took a hot bath as the doctor had suggested at one point for my pain. I also took some ibuprofen along with that. At this point I feel a little relief but nothing significant. My taste is coming back now which is certainly a plus.
DAY 5 (May 5) -
Had a really hard time falling asleep last night. Still had a lot of pain that just didn't let up. I felt better today when I woke up, I only had mild pain and tiredness. Went to the grocery store with Kurt and Kalli mostly to get out of the house. It was actually a nice day for once. After we got home I was extremely exhausted. The store really wore me out. I took a long and heavy nap. And still now I am very tired. My pain has increased too. I am just hoping that I am able to sleep better tonight.
Slept quite well last night. Woke up kinda tired and was just lazy most the afternoon. Was unable to nap so I decided to go pick up Kalli from my moms. She was going to stay another night because Kurt had to work but I missed her too much :) And was feeling decent. My taste and appetite aren't great today. But other than that no more to report.
DAY 2 (May 1) -
Had a good sleep until Kalli decided to wake up at 6 and not go back to sleep. I was again just pretty lazy all day. Didn't even get out of my PJ's. I was able to take a okay nap. I really wish it had been longer. Taste still not great. Appetite decent.
HAIR NOTE: Ever since I had my head shaved, my hair continues to grow quite fast. I am debating on just letting it grow now. I have a feeling that my hair may have not fallen out. Who knows....
DAY 3 (May2) -
Slept better last night. Felt tired today but didn't seem as bad as usual. I did still take a nap which could have been longer and I had no desire to do much of anything. But overall I felt ok. Taste still off and started getting the heartburn and bone pain today. Well I guess I don't really have more to add to that.
DAY 4 (May3) -
Slept good again last night. Was pretty tired again all day. Took a nap but I didn't get a very good nap at all. Been raining so much here that were all antsy to get out of the house. So we went out for dinner then stopped at Target to do a little bit Mother's Day shopping. By the time we got home I was so exhausted and in a ton of pain.
DAY 5 (May 4) -
Slept okay. Woke up in a ton of pain. Was worn out and in pain all day with no relief. I took a pretty good nap. Was able to make dinner and give Kalli a bath but that really pushed it for me. Was just too much to handle. So sad. Most people think of these as simple tasks. But for me right now it was extremely hard. I was in tears by the end of bath time. After Kalli went off to bed I took a hot bath as the doctor had suggested at one point for my pain. I also took some ibuprofen along with that. At this point I feel a little relief but nothing significant. My taste is coming back now which is certainly a plus.
DAY 5 (May 5) -
Had a really hard time falling asleep last night. Still had a lot of pain that just didn't let up. I felt better today when I woke up, I only had mild pain and tiredness. Went to the grocery store with Kurt and Kalli mostly to get out of the house. It was actually a nice day for once. After we got home I was extremely exhausted. The store really wore me out. I took a long and heavy nap. And still now I am very tired. My pain has increased too. I am just hoping that I am able to sleep better tonight.
Friday, April 29, 2011
Chemo Number Seven
First I had an appt with Dr. Draper today. He was just basically seeing how things were going. Scheduled another MUGA Scan, Pulmonary Function test, and PET scan. The first 2 are May 20 and the PET Scan is on May 21. The MUGA and PET will just make sure my lungs and heart are still fine and the PET will show if there is any cancer left in my body.
I lost a pound since the last visit. No biggie. My white counts were low again. I was still able to proceed with the treatment. Just goes to show how careful I really have to be. I mean I pretty much shouldn't be doing much of anything or going anywhere public. Which is so aggravating. Makes me feel like a prisoner. I know it is for the greater good of getting better but doesn't make easy or fun.
Other than that treatment went fine. I am super tired again. My mom took me to the treatment then she took Kalli home for the night. I slept for about 4 hours and I am still extremely tired. I wasn't even hungry for dinner but I made myself eat a sandwich. My knees are starting to bother me like they have been. Well I really think that is all for the day. Check back tomorrow for my updates.
Lots of LOVE....
I lost a pound since the last visit. No biggie. My white counts were low again. I was still able to proceed with the treatment. Just goes to show how careful I really have to be. I mean I pretty much shouldn't be doing much of anything or going anywhere public. Which is so aggravating. Makes me feel like a prisoner. I know it is for the greater good of getting better but doesn't make easy or fun.
Other than that treatment went fine. I am super tired again. My mom took me to the treatment then she took Kalli home for the night. I slept for about 4 hours and I am still extremely tired. I wasn't even hungry for dinner but I made myself eat a sandwich. My knees are starting to bother me like they have been. Well I really think that is all for the day. Check back tomorrow for my updates.
Lots of LOVE....
Sunday, April 17, 2011
Days following Sixth Chemo
DAY 1 (April 16, 2011) -
Slept pretty decent. Took ibuprofen for my knees and slept with a pillow between them. Also took a melatonin. Woke up very tired. I was tired all day. Kurt took Kalli to a party in the morning and into the afternoon so I was able to take a nap for a few hours. I felt a little better after that and then I just got tired again about an hour or so later. I spent the whole day on the couch. Again nothing tasted right. That's about for day one.
DAY 2 (April 17, 2011) -
Slept okay. Did wake up a few times which is aggravating! Didn't feel as tired when I woke up. Kurt and I took Kalli to see the Easter Bunny here in our community and then went to my Mother in Laws to celebrate my brother in laws birthday. By the time we got to her house I was exhausted. Stayed tired the entire rest of the day and night. I still can't taste anything and I had bad heart burn. Guess that's it for day two. Sorry if it always sounds like I am complaining. I really just telling you what I am going through. Thanks you all of you who support me. Lots of love!!
DAY 3 (April 18, 2011) -
Again slept okay. Woke up a few times. Muscles are very sore and very uncomfortable. Kurt didn't have to work today but he and my brother in law did some work outside on the house so Kalli went to the sitter. The work was loud so I wasn't able to nap until they left for lunch. But it really helped not having to run around after Kalli. I was tired after Kalli got home but it was more of a worn out feeling. I just sat on the couch and let her play. I feel bad about doing that but that is all I can do. And I really don't think she knows any better. We did go outside for a bit too and I just sat in a chair and watched her play. I just tell her that mommy doesn't feel good. And she seems okay with that. I am just so ready to have my life back. It is hard having this disease control my life. When I get my chemo I am tired and worn out and not myself at all for about a week. I can't really go anywhere or do much of anything. I have to avoid crowds and sick people. I can't even clean my house if I wanted to because I have no energy. And that is just a little of how I feel. I know that I will get better soon and this is just a very small chapter in my life but it doesn't make it easy.
DAY 4 (April 19, 2011) -
Slept horrible last night. I woke up several times. I had a lot of deep muscle pain even though I took Ibuprofen. I took Kalli to the sitter today and slept for about 3 hours straight. Was still tired the rest of the night. Just worn out again. My taste didn't seem as bad today and my appetite wasn't as bad either so that is good. Was in pain all day though which is annoying. Well until tomorrow....
DAY 5 (April 20, 2011) -
Slept like crap again... The storms and the pain kept me up most the night. I took Kalli to the sitters today. I was tired but couldn't sleep. So I just rested. I was in pain again all day. My taste was pretty much back which is great! I was able to do a few things today like laundry and cook dinner so that was good. Also felt a little down today. I am half way through treatment which is great but I still have 3 more months to go. And with each treatment my body is getting more tired and reacting more to the chemo. Makes it hard. I am really trying to stay strong and positive. :)
DAY 6 (April 21, 2011) -
Slept pretty good last night. Was tired again today but was able to keep Kalli home with me today. I did however take a 2 and half hour nap and I didn't do anything but lounge all day. Still had some pain today but it was a bit more mild.
Slept pretty decent. Took ibuprofen for my knees and slept with a pillow between them. Also took a melatonin. Woke up very tired. I was tired all day. Kurt took Kalli to a party in the morning and into the afternoon so I was able to take a nap for a few hours. I felt a little better after that and then I just got tired again about an hour or so later. I spent the whole day on the couch. Again nothing tasted right. That's about for day one.
DAY 2 (April 17, 2011) -
Slept okay. Did wake up a few times which is aggravating! Didn't feel as tired when I woke up. Kurt and I took Kalli to see the Easter Bunny here in our community and then went to my Mother in Laws to celebrate my brother in laws birthday. By the time we got to her house I was exhausted. Stayed tired the entire rest of the day and night. I still can't taste anything and I had bad heart burn. Guess that's it for day two. Sorry if it always sounds like I am complaining. I really just telling you what I am going through. Thanks you all of you who support me. Lots of love!!
DAY 3 (April 18, 2011) -
Again slept okay. Woke up a few times. Muscles are very sore and very uncomfortable. Kurt didn't have to work today but he and my brother in law did some work outside on the house so Kalli went to the sitter. The work was loud so I wasn't able to nap until they left for lunch. But it really helped not having to run around after Kalli. I was tired after Kalli got home but it was more of a worn out feeling. I just sat on the couch and let her play. I feel bad about doing that but that is all I can do. And I really don't think she knows any better. We did go outside for a bit too and I just sat in a chair and watched her play. I just tell her that mommy doesn't feel good. And she seems okay with that. I am just so ready to have my life back. It is hard having this disease control my life. When I get my chemo I am tired and worn out and not myself at all for about a week. I can't really go anywhere or do much of anything. I have to avoid crowds and sick people. I can't even clean my house if I wanted to because I have no energy. And that is just a little of how I feel. I know that I will get better soon and this is just a very small chapter in my life but it doesn't make it easy.
DAY 4 (April 19, 2011) -
Slept horrible last night. I woke up several times. I had a lot of deep muscle pain even though I took Ibuprofen. I took Kalli to the sitter today and slept for about 3 hours straight. Was still tired the rest of the night. Just worn out again. My taste didn't seem as bad today and my appetite wasn't as bad either so that is good. Was in pain all day though which is annoying. Well until tomorrow....
DAY 5 (April 20, 2011) -
Slept like crap again... The storms and the pain kept me up most the night. I took Kalli to the sitters today. I was tired but couldn't sleep. So I just rested. I was in pain again all day. My taste was pretty much back which is great! I was able to do a few things today like laundry and cook dinner so that was good. Also felt a little down today. I am half way through treatment which is great but I still have 3 more months to go. And with each treatment my body is getting more tired and reacting more to the chemo. Makes it hard. I am really trying to stay strong and positive. :)
DAY 6 (April 21, 2011) -
Slept pretty good last night. Was tired again today but was able to keep Kalli home with me today. I did however take a 2 and half hour nap and I didn't do anything but lounge all day. Still had some pain today but it was a bit more mild.
Saturday, April 16, 2011
Sixth Chemo
Sorry didn't write this yesterday I was very tired....
I am now half way through treatment!! Very exciting!
My husband Kurt went with me to chemo yesterday. It was nice for him to see how things go for me at chemo. My white count was good so there was no problem receiving my treatment. I gained another pound and a half. That is about at total of 13lbs since I have started my treatments. Funny thing is I have stopped trying to gain wait. But still happy with the result. I got pretty tired pretty fast yesterday. As soon as we got home I instantly wanted to take a nap. Kurt got Kalli from the sittters and took her to the grocery store with him so I had time to sleep. Thanks hun! Even after my hour and a half nap I was still exhausted. I felt like I just couldn't move. So just laid on the couch and watched Kalli play. My knees and forearms were tingly and achy again. That didn't start until about 10 PM or so. Such a strange sensation. My knees feel heavy and achy and hard to move. My arms just tingle. I am guessing this may happen with each treatment going forward but who knows! Well check back all week I will update how I am feeling each day.
I am now half way through treatment!! Very exciting!
My husband Kurt went with me to chemo yesterday. It was nice for him to see how things go for me at chemo. My white count was good so there was no problem receiving my treatment. I gained another pound and a half. That is about at total of 13lbs since I have started my treatments. Funny thing is I have stopped trying to gain wait. But still happy with the result. I got pretty tired pretty fast yesterday. As soon as we got home I instantly wanted to take a nap. Kurt got Kalli from the sittters and took her to the grocery store with him so I had time to sleep. Thanks hun! Even after my hour and a half nap I was still exhausted. I felt like I just couldn't move. So just laid on the couch and watched Kalli play. My knees and forearms were tingly and achy again. That didn't start until about 10 PM or so. Such a strange sensation. My knees feel heavy and achy and hard to move. My arms just tingle. I am guessing this may happen with each treatment going forward but who knows! Well check back all week I will update how I am feeling each day.
Saturday, April 2, 2011
Days following my Fifth Treatment
DAY 1 - (April 2, 2011) -
Had some trouble sleeping last night. It is so hard being so tired but not being able to sleep. My knees were really bothering me. I took a melatonin and put a pillow between my legs. After about 45 mins I was able to fall asleep. I woke up feeling okay today. I was able to pick up Kalli from my moms. I did take a 2 hour nap afterwards and have felt tired ever since. My taste is way off again and I have not really been hungry. I am very happy to say that my knees and arms have not bothered me at all today. I really hope to get some better sleep tonight. Until tomorrow....
DAY 2 - (April 3, 2011) -
Took a melatonin before even laying down last night. Didn't have too much trouble falling asleep. I did however had a problem staying asleep. I woke this morning with huge headache. I could move off the couch until about 4 this afternoon. Luckily Kurt took Kalli grocery shopping and I was able to get a 2hr nap and he was just ahuge help today. I have been tired and nauseous and just felt like crap all day. My taste is way off still. So much so that I can't even drink water. I am having a hard to quinching my thirst. So annoying. LOL! Well that's all got today.
DAY 3 - (April 4, 2011) -
Slept much better last night. I took another melatonin and read a bit and don't even remember falling asleep. And I stayed asleep all night! Woke up tired and and worn down. Felt nauseous for about half the day then it started to ease up after a while. My taste is still off. I can't wait until that wears off. It is a very annoying side effect. Well I guess that is really it for the day.
DAY 4 - (April 5, 2011) -
Took a melatonin before bed again. (Looks like this may have to be common practice for me the week after chemo.) And I also read for a while again. I was able to fall asleep well. However when Kurt's alarm went off this morning I woke up and I had a very hard time falling back asleep. At some point I finally did but it wasn't good sleep. I took Kalli to the sitters today and took about a 4 hr nap. That was really much needed. I didn't feel nauseous today so that was a huge plus. My taste is still off but I can tell it is getting better. My appetite has been off since treatment and that really hasn't improved a ton yet. But usually when I get my taste back I get my appetite back too. No more to report for the day.
DAY 5 - (April 6, 2011) -
Slept well last night. Again took a melatonin and read some of my book. I keep dreaming a bunch though which is keeping me from sleeping well. I decided to keep Kalli home with me today. Which probably was not the best of ideas. We didn't even do anything and and by nap time I was exhausted. I took a two hour or so nap. My taste and appetite still the same as yesterday. But I can tell now I am starting to feel better.
DAY 6 - (April 7, 2011) -
Slept pretty good again last night. Felt decent when I woke up. My taste and appetite are back to normal (thank goodness!) Decided to take Kalli and I to the store to get a dress for Saturday. We were in the store for no more than 20 mins then headed back home. And wow I was exhausted afterwards. My whole body was tired. And I was unable to get a good nap in when Kalli was napping. People kept calling and the dog kept barking. Kurt had to work both jobs so I had to pull through and make dinner and play with Kalli even though I just wanted to veg. After Kalli went bed I took some time to relax then went to bed. Was a long exhausting day for me...
Had some trouble sleeping last night. It is so hard being so tired but not being able to sleep. My knees were really bothering me. I took a melatonin and put a pillow between my legs. After about 45 mins I was able to fall asleep. I woke up feeling okay today. I was able to pick up Kalli from my moms. I did take a 2 hour nap afterwards and have felt tired ever since. My taste is way off again and I have not really been hungry. I am very happy to say that my knees and arms have not bothered me at all today. I really hope to get some better sleep tonight. Until tomorrow....
DAY 2 - (April 3, 2011) -
Took a melatonin before even laying down last night. Didn't have too much trouble falling asleep. I did however had a problem staying asleep. I woke this morning with huge headache. I could move off the couch until about 4 this afternoon. Luckily Kurt took Kalli grocery shopping and I was able to get a 2hr nap and he was just ahuge help today. I have been tired and nauseous and just felt like crap all day. My taste is way off still. So much so that I can't even drink water. I am having a hard to quinching my thirst. So annoying. LOL! Well that's all got today.
DAY 3 - (April 4, 2011) -
Slept much better last night. I took another melatonin and read a bit and don't even remember falling asleep. And I stayed asleep all night! Woke up tired and and worn down. Felt nauseous for about half the day then it started to ease up after a while. My taste is still off. I can't wait until that wears off. It is a very annoying side effect. Well I guess that is really it for the day.
DAY 4 - (April 5, 2011) -
Took a melatonin before bed again. (Looks like this may have to be common practice for me the week after chemo.) And I also read for a while again. I was able to fall asleep well. However when Kurt's alarm went off this morning I woke up and I had a very hard time falling back asleep. At some point I finally did but it wasn't good sleep. I took Kalli to the sitters today and took about a 4 hr nap. That was really much needed. I didn't feel nauseous today so that was a huge plus. My taste is still off but I can tell it is getting better. My appetite has been off since treatment and that really hasn't improved a ton yet. But usually when I get my taste back I get my appetite back too. No more to report for the day.
DAY 5 - (April 6, 2011) -
Slept well last night. Again took a melatonin and read some of my book. I keep dreaming a bunch though which is keeping me from sleeping well. I decided to keep Kalli home with me today. Which probably was not the best of ideas. We didn't even do anything and and by nap time I was exhausted. I took a two hour or so nap. My taste and appetite still the same as yesterday. But I can tell now I am starting to feel better.
DAY 6 - (April 7, 2011) -
Slept pretty good again last night. Felt decent when I woke up. My taste and appetite are back to normal (thank goodness!) Decided to take Kalli and I to the store to get a dress for Saturday. We were in the store for no more than 20 mins then headed back home. And wow I was exhausted afterwards. My whole body was tired. And I was unable to get a good nap in when Kalli was napping. People kept calling and the dog kept barking. Kurt had to work both jobs so I had to pull through and make dinner and play with Kalli even though I just wanted to veg. After Kalli went bed I took some time to relax then went to bed. Was a long exhausting day for me...
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